Providing education about testing and supporting research on Canavan disease requires funding and collaboration. The Canavan Foundation can only continue to make a difference in dealing with this deadly disease with your help. This help can come in the form of tax-deductible contributions, remembering us in your will, participation in our fund-raising events or as part of our local and national outreach efforts.
Donation by Mail
Download our donation form and mail it to us with a check or money order. The form has information on making a donation in honor or in memoriam.
The Canavan Foundation processes online donations via PayPal. You do not need to have a PayPal account to make a donation via PayPal. If you do not have an account click the link below, then choose “Don’t have a PayPal account?” and you can pay with a debit or credit card.
Online Donations in Honor or in Memoriam
You can make a donation via PayPal in memory or in honor of someone else the Canavan Foundation will send a notification on your behalf. Start by clicking the "Donate" button above. Specify your donation amount and complete your payment information. Once you submit your information you will see a second (confirmation) page.
On the confirmation page, click "Add special instructions to the seller."
Then give us the name of the person in whose honor or memory the gift is being made, your name, and the name and address of the person who should receive the notification and finish the transaction.
Corporate Matching Funds
Matching funds can increase the value of your gift to the Canavan Foundation. If your employer matches charitable donations, please apply for the matching funds.
Bequests and Planned Giving
In your will, you have choices as to how you name the Canavan Foundation as a beneficiary. Whichever you select, it is important that your attorney knows that bequests should be made to Canavan Foundation, 450 West End Avenue, New York, NY 10024. Our Federal Tax Identification number is 13-3651563.
One possibility is a bequest of a fixed dollar amount. You specify exactly how much you would like the foundation to receive. Another is to give the Canavan Foundation a percentage of the estate. This makes good sense if you don’t have a clear idea of how much your estate will be worth at your death. Finally, many people prefer to designate the residuary estate, or a portion of it. Once other heirs are provided for, whatever may be left goes to your favorite charity.
The following suggested language will be of interest to your attorney: “I give and bequeath to the Canavan Foundation with its offices at 450 West End Avenue, New York, NY 10024, ($___, or ___% of my estate, or my residuary estate).”
Please let us know if you’re planning to make the Canavan Foundation one of your beneficiaries, we encourage you to tell us now. We can work with you and your advisors to make sure the bequest is planned, administered properly, and, if desired, publicly acknowledged. Requests for anonymity are respected.
To Learn More
Please contact us.
One of the prime goals of the Canavan Foundation is to help build healthy families. If you or your child is looking for a Mitzvah Project for his or her Bar/Bat Mitzvah or other life-cycle event, please contact us about distributing our materials, setting up community education forums, or raising money to support our work. Contact Us for more information.
Every year Canavan Foundation supporters gather for dinner and a Broadway show. This is our major fundraising event. The producer or director joins us for a fascinating pre-show Q&A over dinner and we generally gather before the show for dinner, and after the show for dessert and drinks nearby. In recent years we have been to "The Audience," "Matilda The Musical," “The Addams Family,” “War Horse," “Death of a Salesman" and "A Raisin in the Sun." Click here for more information on this year's gala.
Our goal is for everyone—Jewish and non-Jewish alike—to understand the risk of Canavan disease and other serious genetic diseases, and to be appropriately screened before starting a family. You can help us by distributing educational materials to friends or family, or through your synagogue or other organization.
Join our e-mail list
Receive updates on research and screening developments and invitations to Canavan Foundation events. Add yourself to the email list.
Request educational materials
The Canavan Foundation is a founding member of the Jewish Genetic Disease Consortium (JGDC) and is pleased to distribute the JGDC’s newly-updated 16-page brochure on Jewish genetic diseases. Contact us for free copies.
Link to our Site
If you have a site that attracts Jewish singles or families, or a site that deals with genetic screening and the health of children, please link to our site: www.canavanfoundation.org.
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