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Families

Parents with a Canavan Child: Orren and Seth

Orren and Seth found out they were carriers of Canavan disease when their second child, Morgan, was diagnosed at the age of 15 months. Orren and Seth talk about the impact of losing their daughter to Canavan Disease at the age of 7-1/2 and how it led them to be proponents of early and complete carrier screening for prospective parents.

 

 

The Canavan Foundation assumes no liability or responsibility for any opinions, advice, procedures or results provided by any independent individual or entity with respect to genetic disease screening.

The information in these videos is for informational purposes only. It is intended to give the viewer a broad overview of the genetic disease screening process and the Jewish genetic diseases for which screening is currently available.

This video is not intended to be a substitute for professional medical advice, diagnosis, treatment or genetic counseling. Genetic science is a rapidly developing field. The information in this video is subject to update and screening options may change. Your physician or other qualified healthcare provider can assist you with any questions you may have regarding your personal situation and the genetic disease screening process.