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Websites With Information on Genetic Diseases

Please note that clicking on these links takes you to sites outside the Canavan Foundation, and we take no responsibility for the content or accuracy of the materials on these sites. Please read the full terms of use and privacy statement.

Jewish Genetic Disease Consortium. A comprehensive site covering a wide range of diseases that affect persons of Ashkenazi, Sephardic and Mizrahi Jewish heritage. The Canavan Foundation was a founding member of the Consortium. 

Center for Jewish Genetics (formerly the Chicago Center for Jewish Genetic Diseases). Education, outreach and programming to the Jewish community about genetic health issues such as carrier screening, hereditary cancers and counseling services.

National Institutes of Health, Genetics Home Reference. A comprehensive site with information on all types of genetic issues, on a relatively sophisticated level.

National Tay-Sachs and Allied Diseases. Dedicated to the treatment and prevention of Tay Sachs related diseases, including Canavan disease. 

Victor Centers for the Prevention of Jewish Genetic Diseases. The mission of the Victor Centers for the Prevention of Jewish Genetic Diseases is to ensure ongoing access to comprehensive genetic education, screening and counseling services.

Genetic Alliance. The world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. They have a dedicated website for consumer information: Genes in Life.