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Confidentiality

When it was first introduced, there were confidentiality concerns about genetic screening and a fear that data might be misused. This should no longer be a concern.

In 2008 the Genetic Information Nondiscrimination Act of 2008 (GINA) was signed into law. It’s a federal statute that protects Americans from being treated unfairly because of their genetic inheritance.

As of May 2009, health insurers may not deny or limit coverage or charge higher premiums based on a person’s genetic information. As of November 2009, employers may not use genetic information to make decisions about hiring, firing, promotion or job placement.